Alies MaybeeSPOR Team Lead and Patient Advisor
As a patient advisor, Alies Maybee brings to this work her background as patient and caregiver plus her professional experience as a business analyst for technology companies and as a partner in a brand consultancy.
Through Patients Canada and directly, she has participated in many projects and panels on various aspects of healthcare. Alies works with Health Quality Ontario developing performance measures from the patient perspective. She leads the Patients Canada SPOR Demonstration project piloting patient partners on research teams and the use of patient experience to drive research.
Since November 2012 Alies has been on the Research Management Committee of TVN, a Centre of Excellence for improving care for the frail elderly. As such, she helps set research strategy, evaluate proposals and make funding decisions. She also participates on their citizen engagement working group looking at how best to involve patients and families in research.
At her local hospital, Alies is a member and co-chair of the newly formed Community Engagement Council, the result of her work on an earlier group led by the VP Quality Strategic Information and Performance Systems to determine the future shape of patient participation at the hospital. And she is one of two initial PFAs (patient and family advisors) piloting the involvement of patients in the hospital.
15:50 Getting ahead of the game by involving patients in identifying common issues and co-designing solutions
- How to work with patients who are advisors and not immediate complainants in a constructive way to identify issues from patient's stories
- How to identify complainants that might be interested in becoming advisors
- How to leverage the advisors to work on co-design teams to build solutions